Pearl Jam star Eddie Vedder’s lovely wife and very-well known global citizen ambassador, Jill Vedder, posted a new photo on her official Instagram page and talked about her recent trip to India.
As Jill Vedder talks about her trip to India, she also shared the story of Salim and his mother who are supported by the EB Research Partnership which funds research aimed at treating.
Here is what she wrote:
“I’m still in India but thinking about all of our EB friends on #rarediseaseday… 🦋”I cling to the hope that EBRP provides us…hope for a cure” says Laura, #EBSuperhero Salim’s mom.
I am proud that our work at @ebresearch provides EB families with hope that EB will soon be a thing of the past. This #RareDiseaseDay, support Salim and all those living with EB. Read his story, the link is in my bio 🦋🦋🦋”
An Instagram user named proudmtneer commented:
“And through his pain, he still smiles. Pure resilience.”
Another user, bossygail shared his respect to Jill:
“Thank you for bringing awareness about this, I had never heard of this.🙏”
You can check out the photo below.
